Autherapies | Evidence-based therapies

Assessment of carer and family needs

Taking on the role of a caregiver can be an immensely challenging experience, often accompanied by a substantial burden that can result in overwhelming strain and various health issues. Recognizing the significance of this role and the potential consequences it can have on the caregiver's well-being, it becomes crucial to assess and address their specific needs, including also the right of short breaks and other respite care.

The assessment of caregiver and family needs involves a comprehensive process that utilizes also interviews. By employing these tool, professionals aim to gain a comprehensive understanding of the caregiver's circumstances, challenges, and requirements. This evaluation encompasses various dimensions, including the physical, mental, and emotional well-being of the caregiver.

Areas that should be covered are:

  • Self-harm and self-neglect (in particular in people with depression or a moderate or severe learning disability)
  • Rapid escalation of problems
  • Harm to others; exploitation or abuse by others
  • Breakdown of family or residential support
  • Personal, social and emotional support
  • Practical support in their caring role, including short breaks and emergency plans
  • A plan for future care for the child or young person, including transition to adult services

In addition to interviews, standardized self-reported questionnaires are utilized to gather quantifiable data regarding the caregiver's well-being and their capacity to provide care effectively. These questionnaires are designed to measure various aspects, such as the caregiver's level of stress, depression, anxiety, and overall quality of life. By utilizing validated measurement tools, professionals can obtain reliable and comparable information, enabling them to assess the caregiver's current state accurately.

Domain
Carer and Family Support
Level of evidence
High
Who is this for?

Family members and carers of young children and adults with ASD



The assessment process also takes into consideration the caregiver's knowledge and skills related to caregiving. It seeks to determine whether the caregiver possesses the necessary information, training, and capabilities to provide optimal care for their loved one with special needs. Identifying any gaps in knowledge or areas requiring additional support allows professionals to tailor interventions and provide the caregiver with the necessary resources to enhance their caregiving abilities.

This assessment process also ensures that referrals to comprehensive assessment and treatment services are made when necessary, ultimately promoting the well-being of both the caregiver and their loved ones.

References

Campbell, J. M. (2022). The Lived Experience of Compound Carers in the Western Suburbs of Melbourne: A Qualitative Approach (Doctoral dissertation, Deakin University).

Whitmore, K. E. (2017). Factors Associated with Unmet Respite Care Needs in Families of Children with Autism Spectrum Disorder (Doctoral dissertation, The University of Wisconsin-Milwaukee).

Dunst, C. J. (2022). Systematic Review and Meta-Analysis of Family Needs Studies: Relationships with Parent, Family and Child Functioning. European Journal of Psychology and Educational Research, 5(1), 11-32.

Link Source

https://dro.deakin.edu.au/articles/thesis/The_Lived_Experience_of_Compound_Carers_in_the_Western_Suburbs_of_Melbourne_A_Qualitative_Approach/24769203/1/files/43531776.pdf

Factors Associated with Unmet Respite Care Needs in Families of Children with Autism Spectrum Disorder - ProQuest

https://eric.ed.gov/?id=EJ1353289


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